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RCMAR Measurement Tools
Please note that because many of these tools are copyrighted
we cannot provide copies. Please contact the individual authors
for permissions and copies of these tools. Contact information
is available on the page describing each tool in detail.
Web Sites with Measurement Tools
The Medical Algorithms Page
A Medical Algorithm is any computation, formula,
survey, or look-up table, useful in healthcare. More than 8000 algorithms,
organized into 45 chapters, are available as spreadsheets which can
be opened in your browser (IE4.1+, Netscape 7.1+ ). Developed by the
Institute for Algorithmic Medicine, a non-profit Texas Corporation.
This web site is currently designed for Internet Explorer and Netscape
on computers running Windows98 and later versions.
http://www.medal.org/Visitor/login.aspx
The Brain Attack Coalition
The Brain Attack Coalition is a group of professional,
volunteer, and governmental entities dedicated to reducing the occurrence,
disability, and death associated with stroke. The goal of the Coalition
is to strengthen and promote the relationships among its member organizations
in order to help stroke patients or those who are at risk for a stroke.
Five stroke scales are available for evaluating a stroke patient.
http://www.stroke-site.org
Center for Excellence in Surgical Outcomes
Sponsored by Duke University Medical Center, the
Center for Excellence in Surgical Outcomes contains an Outcome Scales
Repository with the respective references to the original questionnaires.
Whenever available, a full-text reference to the original questionnaire
and/or a review paper about the psychometric properties of the scale
are also presented. Original questionnaires are either linked from
another web site or posted after obtaining permission from the journal
and author. This web site is currently under construction and may
not be completed until early 2004. Ultimately, it will include scales
to measure joint pain, neurological condition, physical disability,
quality of life, and mental health, among many others.
http://www.ceso.duke.edu/uronline/uronline.htm
Department of Veterans Affairs - METRIC
The Measurement Excellence and Training Resource
Information Center (METRIC) is a Resource Center within the VA Health
Services Research & Development Service. METRIC has been charged
with improving the overall measurement quality in VA research. Improving
measurement allows researchers to more accurately capture the health,
social and economic condition of the veterans who use the services
of the Veterans Health Administration. Sound and thorough measurement
methods in VA research result in studies that produce reliable data.
Sound data then enables VA organizations to improve the quality of
care for veterans by making evidence-based decisions in the form of
clinical, organizational or system-level modifications.
http://www.measurementexperts.org/
FACIT - Functional Assessment of Chronic Illness
Therapy
FACIT.org manages the distribution and information
regarding administration, scoring, and interpretation of a range of
questionnaires that measure health-related quality of life for people
with chronic illnesses. Their first questionnaire, The Functional
Assessment of Cancer Therapy -General (FACT-G), was developed and
validated over 10 years ago, and has been used in hundreds of studies
worldwide. Since the publishing of the first FACT-G validation paper
in 1993, they have developed more than 40 questionnaires and translated
some of them into over 45 different languages. While cancer remains
a major focus, they have also developed and translated instruments
for fatigue, treatment satisfaction, spiritual well-being, HIV disease,
multiple sclerosis, and other chronic conditions. The FACIT.org mission
is to promote use and application of these measurements as a means
of improving healthcare for chronic illness.
http://www.facit.org/home.html
Harcourt Assessment, Inc.
Previously known as The Psychological Corporation.
PsychCorp was the clinical division of Harcourt Assessment, which
also had an education division called Harcourt Educational Measurement.
In late 2003 the company unified the two divisions, retired their
names, and officially changed the company name to Harcourt Assessment,
Inc. They provide a large number of clinical assessment products for
psychological evaluations.
http://www.HarcourtAssessment.com
Health and Psychosocial Instruments (HaPI)
The HaPI database provides easy access to information
on over 120,000 instruments including questionnaires, interview schedules,
checklists, index measures, coding schemes/manuals, rating scales,
projective techniques, vignettes, scenarios, and tests. The instruments
were culled from health fields, psychosocial sciences, organizational
behavior, and library and information sciences. Dr. Evelyn Perloff
at the University of Pittsburgh School of Nursing created HaPI.
http://www.ovid.com/site/catalog/DataBase/866.jsp?top=2&mid=3&bottom=7&subsection=10
International Society for Quality of Life Research
Click on ‘Resources’ from the selection
list to view a page of links to sites and resources for quality of
life research. An extended bibliography is also available.
http://www.isoqol.org
Kidney Disease Quality of Life Working Group
The long form of the KDQOL™ (134 items) was
developed in 1994 by the Kidney Disease Quality of Life Working Group
with support from Amgen. After release of the KDQOL™ Long Form,
the group began work on the KDQOL™ Short Form. The Short form
was translated into French, Spanish, Italian, German, and Japanese
for the Baxter Renal Outcomes Study. Since then, the group has been
active in collecting longitudinal data, constructing scoring manuals,
and developing software to make the administration and scoring of
the KDQOL™ as easy as possible.
http://www.gim.med.ucla.edu/kdqol/
MAPI Research Institute
MAPI Research Institute is a non-profit international
health outcomes organisation established to support and promote research
in the field of Health-Related Quality of Life (HRQoL). The Institute's
team of experienced professionals offers a wide range of expertise
and research services. Recognising that the sharing of information
is a crucial element in the development of any science, MAPI Research
Institute freely provides information and counsel to academics, non-profit
institutions, clinicians and hospitals. The institute works closely
with academics, clinicians, pharmaceutical industry specialists, health
authorities, government agencies, and other non-profit organisations
to advance the science of quality of life assessment. Numerous questionnaires
have been translated into many languages.
http://www.mapi-research-inst.com/index02.htm
Measurement Excellence and Training Resource Information
Center
The Measurement Excellence and Training Resource
Information Center is the premier resource for improving measurement
in the VA research and development community, dedicated to serving
the measurement needs of VA researchers in every phase of research.
http://www.measurementexperts.org/
Medical Outcomes Trust
The Medical Outcomes Trust is a not for profit organization
dedicated to improving health and health care by promoting the science
of outcomes measurement, and the development, evaluation and distribution
of standardized, high quality instruments that measure health and
the outcomes of medical care. The Trust supports the use of these
instruments with services and publications.
http://www.outcomes-trust.org/
Michigan Diabetes Research and Training Center
The Michigan Diabetes Research and Training Center has developed
several survey instruments for diabetes patients and health professionals
which are available to download.
http://www.med.umich.edu/mdrtc/survey/index.html
Quality Metric Inc.
QualityMetric Incorporated, an independent privately held corporation
based in Lincoln, RI, was founded in 1997 by John E. Ware, Jr.,
PhD, principal developer of the SF-36®, SF-12®, and SF-8™
Health Surveys, the most widely used health assessment surveys in
the world. In addition, QualityMetric offers short form surveys
for many chronic disease states that can be used to predict risk,
inform treatment decisions, and provide insight on the functioning
and well-being of defined populations.
http://www.qualitymetric.com/
RAND Corporation Health Homepage
RAND Health's current research agenda is international
in scope. It reflects the range of health care policy issues in the
United States and abroad, analytic challenges posed by the needs of
specific populations, and the demand for rigorous and innovative research
methods to support empirical assessment. All of the surveys that appear
on the RAND Health site are public documents, available without charge
to all researchers.
http://www.rand.org/health/surveys.html
Spanish Language Web Site of Geriatric/Gerontological
Measurement Tools
Matia Fundazioa, San Sabastian, Spain
Social services for elder persons.
http://www.matiaf.net/profesionales/evaluacion.html
Stanford Patient Education Research Center
The Stanford Patient Education Research Center has
about 20 years of experience developing, adapting, and testing self-administered
scales in English and Spanish for research subjects with chronic diseases.
These scales are here for you to use in your own research at no cost,
thanks to funding from the National Institute of Nursing Research
(NINR).
http://patienteducation.stanford.edu/research/
If you know of a web site that should be included
in this list please contact the Measurement Tools Site administrator:
Mark Geesey. This site was last
updated November 2006.
This page has been viewed 
times since November 6, 2003.
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