
The
Alpha-1 Coded Testing (ACT) Trial offers free and confidential
finger-stick testing for Alpha-1 Antitrypsin
Deficiency. The
test can be completed at home and results are mailed to the
participant's home.
The test is administered through a
research study which evaluates perceived risks and benefits of
genetic testing. Anyone can request to be tested.
Participants or the participant's guardian must submit a short pre
and post-test questionnaire.
This new program established by
the Alpha-1 Foundation is headquartered at the Research Registry
Coordinating Center at the Medical University of South Carolina in
Charleston.
For more information or a test kit please email the Registry Coordinator
at alphaone@musc.edu, or
call toll free at 1-(877)-886-2383.
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