The Alpha-1 Coded Testing (ACT) Trial offers free and confidential finger-stick testing for Alpha-1 Antitrypsin Deficiency.  The test can be completed at home and results are mailed to the participant's home.  

 

The test is administered through a research study which evaluates perceived risks and benefits of genetic testing.  Anyone can request to be tested.  Participants or the participant's guardian must submit a short pre and post-test questionnaire.  

 

This new program established by the Alpha-1 Foundation is headquartered at the Research Registry Coordinating Center at the Medical University of South Carolina in Charleston.  

 

For more information or a test kit please email the Registry Coordinator at alphaone@musc.edu, or call toll free at 1-(877)-886-2383.

 

 

 

 

 

 

 

 

 

 

 

 
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